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Cleft
lip and cleft palate are among the childhood language issues addressed
at the Scottish Rite Childhood Language Center at Richmond, Inc.
Speech-Language Pathologists may encounter birth defects such
as cleft lip and cleft palate. These are the fourth-most-common
birth defects worldwide. Clefts occur when the tissues of the
face fail to fuse during gestation, usually between the fourth
and eighth weeks of pregnancy, and the incidence is one in every
700 births. Genetics most frequently plays a role, but there can
be a number of environmental factors as well. Parents are often
initially overwhelmed and saddened after the unexpected birth
of a baby with a cleft. There is, however, much that can be done
to help these children.
In most cases, children grow up to lead normal, productive lives,
but they have medical problems that need to be addressed early
in life. They are more prone to ear infections because the Eustachian
tubes in the ears are frequently affected by the cleft and do
not drain fluid from the middle ear the way they should. Dental
issues are also quite common. Because of their multiple problems,
children with clefts should be seen by many different specialists.
Often they form a "Cleft Palate Team" that offers a
broader perspective to the problem. Usually, such a team includes
an Audiologist, Ear Nose and Throat Surgeon, a Speech-Language
Pathologist, a Geneticist, a Neurosurgeon, a Pediatric Dentist/Orthodontist,
a Pediatrician, a Plastic Surgeon, and others.
The role of the Speech-Language Pathologist on the team is to
provide parents with the information they need regarding speech
and language development and to evaluate the child's current level
of functioning. This evaluation generally consists of diagnostic
tests, videofluroscopy, and nasopharyngoscopy. A plan of treatment
specific to the child's needs is then devised.
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"A facial
birth defect doesn't get in the way of achievement. Parents
need to instill a positive sense of self-esteem in their
children so they can pursue their dreams."
Stacy Keach, Actor and Honorary Chairman
of the Cleft Palate Foundation
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Clefts can be repaired, and cleft lip repairs are generally performed
at about ten weeks of age. A cleft palate is usually repaired
at about 9 to 12 months of age. Bone grafts are typically done
around age nine. Revision work takes place as the child grows.
Although surgeons are very successful at closing clefts, difficulties
with speech often remain. Articulation is affected when the soft
palate cannot make contact with the back of the throat (the pharynx),
and hypernasality is often present. Hyper-nasality occurs when
airflow leaks through the nose during speech. Early intervention
can assist in developing correct sound production, minimizing
hypernasality, and improving language skill development.
A newborn baby is a joy and a blessing, and a baby born with
a cleft is no less a joy. He or she will need the same care, love,
and support as any other child and will return the love received
to family and friends throughout the years. For more information,
please contact The American Cleft Palate-Craniofacial Association
at (919) 933-9044.
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